Please sign the visitors' book.
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Dad and I miss you so very much.We ache for you each day,miss your hugs,the many I love you's. Our life will never be the same or recover from missing you, we are devastated. You brought such joy to our lives . I know there are so many others you touched and left your lasting impression.I know your in heaven shinning so bright. I look up at the stars each night and I see your shine.
Miss you angel, wish you were here with us this Christmas.
Forever missing you and loving you,
Mom and Dad
EULOGY
He had a lot to say
He had a lot of nothing to say
We will miss him
So long. We wish you well
You told us how you weren't afraid to die
Well then, so long
Don't cry or feel too down
Not all martyrs see divinity
But at least you tried
Standing above the crowd
He had a voice that was strong and loud
We will miss him
Ranting and pointing his finger
At everything but his heart
We will miss him
No way to recall
What it was that you had said to me
Like I care at all
So loud
You sure could yell
You took a stand on every little thing
And so loud
Standing above the crowd
He had a voice that was strong and loud
And I swallowed his facade
Cuz I'm so eager to identify with
Someone above the crowd
Someone who seemed to feel the same
Someone prepared to lead the way
Someone who would die for me
Will you? Will you now?
Would you die for me?
Don't you step out of line
Don't you fucking lie
You've claimed all this time that you would die for me
Why then are you so surprised to hear your own eulogy?
You had a lot to say
You had a lot of nothing to say
Come down
Get off your fucking cross
We need the fucking space to nail the next fool martyr
To ascend you must die
You must be crucified
For your sins and your lies
Goodbye.......
Love and Peace to you, friend
-Rick Caffrey
Marc only had two chambers to his heart and his pulmonary arteries were only the size of 2 UNCOOKED speghetti strands. He was in hospital for the most part of his life, in fact all but 6 weeks of his life.
When Marc was born, I remember the doctor saying a perfect little boy! But right away my husband and I noticed that he was "blue". The doctor told us that all babies were blue when they were born. Well I had had another baby 2 years prior and I knew that she was not "BLUE"! Anyway, Marc was born by C-section, as was all three of my children. So I knew that the delivery was not as stressful on him as it could have been. Later that night they came into my room, I thought to bring him to me, but instead it was to tell me that they thought he had an infection, and he was gonna have to stay in the NICU for awhile. I was crushed! I wanted to see my baby so bad! I cried and cried until my husband sent for the nurse, she inturn called for an NICU nurse to come down and talk to my husband and I about Marc. Well she made me feel better, which did not last long, just enough to get me through the night.
The next morning the doctor came into my room and told us that he thought Marc had a mild heart problem and they were gonna run some tests on him. My heart sank! I could not imagine any BABY having a heart problem! (That is not suppose to happen to babies!) Well when he was 2 days old I still had not seen him since he was born. We were told that they needed to transport him to the nearby Medical Center. So that they could investagate more. Well we gave our permission!
The transport team that came to pick him up were like old friends of ours, in fact I came into the NICU after my husband and he was standing there talking to them, I thought that maybe they had gone to school together, but in fact they were total strangers to him! Just two people that cared! They were a husband and wife team with 3 children! We became very good friends with them. When they would do transports to Tulane Medical Center they would come up to check on him. They even brought us some birthday cake of Lindas' and some dinners a couple of times!
Anyway, that was on a thursday that he was transported to Tulane. that friday the went in and did a heart cath. they found the extent of the problem with his heart. His cardiologist team was also a husband and wife team, Dr.'s Bob and Nancy Ascuitto. Dr. Bob came out of the operating room with tears in his eyes and said that he was very sorry but our son was gonna die, there was nothing that they could do to help him. From that moment on, with tears in my eyes, I knew that Marc had something special to give to each and everyone that came in contact with him. Dr. Bob later told us that from the first time that he saw Marc, he just pulled at his heart! He said that he had never had one do that to him! And he had been a doctor for a long time!
When Marc was 10 days old we received a pone calll at 5 in the morning saying to get to the hospital ASAP, that Marc had had a stroke! Everything was fine the night before, I just could not believe it! My husband and I made it to the hospital in about 10 minutes, which was usually a 30 minute drive. When we got there if I would not have know where my baby was I could not have found him! He only weighed about 5 1/2 lbs, but looked as if he weighed 20 lbs! His kidneys had stopped functioning and they told us that he had severe brain damage! They were gonna have to run more tests to see the extent of the damage, but it was gonna be bad! Later that night after all the tests came back they told us that he would never come off the ventalator and would never eat without a feeding tube, basically a vegetable! My husband and I said that we did not want him to have to live like that so we told them to unplug him! That was the hardest decesion that I ever had to make in my life!!!!!! The neonatologist came into the room and told us that he would do whatever we wanted him to do. We told him of our decesion. And he let the room to get Marc ready to meet Jesus! My mother and mother-in-law left the room to go wash up so that they could be with Marc when he left us. And as they were washing up my mother saw Dr. Stroch pacing back and forth in the NICU. She asked him what was the matter? He said that he knew he had told us that he would do whatever we wanted him to do, BUT something or SOMEONE was telling him to give Marc a little more time. So she said well if you do not feel right then they will understand (meaning my husband and I ) which we did! We went in and took some final pictures with him and said our "Goodbyes", and left the hospital. That night my mother and father stayed up praying all night and about midnight that night, Jesus spoke to my mom and told her that Marc was gonna be ok. (I know that may sound weird tyo some of you, but my mother is a very relegious person and this is part of her belief)Anyway, the nurse that was taking care of him that night said that she had wanted to call us at about midnight, but she knew that we would think the worse! But actually he was getting better by the minute!
That saturday Marc came off the vent and wsa sucking his bottle for his mommy! He did not take much formula but it was more than they said he would ever do again! From that moment on the doctors never said that Marc SHOULD or COULD not do anything! He always seemed to prove them wrong anytime they said otherwise!
When he was 5 weeks old he came HOME! His big sister was so happy when her daddy and I walked in with her baby! We were all happy and just knew that he was gonna be OK! HA! Well he was ok for 6 weeks, he was even able to go to 2 different family reunions! How thankful I am for that, we have some great footage of him from the reunions! Even him smiling a his daddy!
On June 13th, 1991 he got sick here at home and had to be rushed to the nearby hospital! A hospital which knew nothing of his condition! When they saw him they told us that he would die within the hour! I looked at my mother and told her to go call Dr, Ascuitto and she did, he then called the ER doctor and told them what to do to get Marc stable until he was able to get there. Dr. Bob came with the same ambluance team to get my Angel! Dr. Bob had him stable and ready for transport with 30 minutes after he arrived at the hospital!
Marc was taken back to Tulane Medical Center but this time into PICU, where he stayed for all but 1 night of the last 6 weeks of his life. The one night he spent in a room, to just have another episode and be taken back to PICU.
in the last 6 weeks of his life he went through a liver biopsy and the placement of a G-tube and a central line, but all of this was done the week before he died. In fact the Friday before he died.
Marc, came to us on a Tuesday and was taken from us on a Tuesday! He died on July 23, 1991 at about 8 o'clock. That morning he has another episode and from then on he was never the same. That morning they were trying to get him out of the episode and did not get a bubble out of one of the needles and it went to his arm, his arm turned blue for the rest of the day! I always wonder if it hurt him! At about 4 o'clock Dr. nancy took him off the vent, she thought that he was ready to come off, something told me that he was not ready! But I am not a doctor! She took him off and at 7 o'clock he had his final episode! This time not to come out of it!!! :,(
That night nurses that were off duty heard the news and came back up to the unit to be with our family! That meant so much to us!
I did something that night that now I look back and regret! I could not hold my Angel! I just did not want to hold my dead baby! But now I WANT THAT MOMENT BACK! I would do anything to have him in my arms. I still have the blanket and the clothes that he wore on that night, in fact last night I took them out. They no longer have his smell! Oh how I wish they did!
The days after that I was in another world, or so it seemed! I will never forget going to pick out his clothes that he would be buried in! We went to JC Penney here and I'll never forget the rude lady that was helping us. At one time I just bursted out into tears and said asked why I was crying, my mother told her! Boy did her attitude change after that!
Well there is so much more that I want to write but I think that I have taken up enough space for now! You will be hearing more from me! Thanks for all of the caring people in this group! I am so thankful that I have found you!
In Tears,
Shanna (Mom to Marc 3/5/91-7/23/91)
mom to Tawny 5/24/88
mom to Mindy 10/6/92
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